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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, see 'Frequently asked questions.'

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    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form.

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  • How to use the Research Library

    Find out more about the digital platform and how to use it here.

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  • Carer health and wellbeing, Physical health

    8.7.2016

    Exploring manual handling practices by informal carers

    Kate Thomas , Carole James , Timothy Broady

    This research explores the manual handling needs and practices of primary carers and makes recommendations regarding education and support with equipment purchasing and use.

    Caregivers Chronic illness Education Health
    View
  • Service systems, Disability services

    24.9.2018

    Exploring the whole family experience living with younger onset dementia from a social model perspective

    Karen Hutchinson

    This research responds to gaps in understanding of people’s experiences of early onset dementia from a social model perspective.

    Dementia Disability Carer support
    View
  • Carer health and wellbeing, Physical health

    8.3.2019

    Health of carers of young people with early psychosis

    Abner Weng Cheong Poon , Jackie Curtis , Ann Howard , Philip Ward , Julia Lappin

    This research demonstrates the importance of a biopsychosocial approach to supporting the carers of mental health service users, to improve health and wellbeing outcomes for both client and carer.

    Health Children and young people Mental health carers Mental health services
    View
  • Service systems, Service changes

    1.2.2022

    Informal care in Australia during the COVID-19 pandemic

    Lukas Hofstaetter , Grace Cherrington

    While strong preventative measures helped Australia manage the COVID-19 pandemic better than most countries, many carers have been left more stressed, isolated and worse off financially.

    COVID-19 Informal carers Social isolation
    View
  • Service systems, Respite services

    1.4.2021

    Repositioning respite within consumer directed service systems

    Carers NSW

    An evidence-based report demonstrating the ways respite is an unmet carer need, and detailing opportunities for respite to be sustainably resourced.

    Wellbeing Respite Carer support
    View
  • Service systems, Disability services

    8.11.2021

    Women’s experiences of accessing individualized disability supports

    Sophie Yates , Gemma Carey , Jen Hargrave , Eleanor Malbon , Celia Green

    This article explores how gender impacts accessibility to support services, in particular looking at the NDIS.

    NDIS Gender Disability services Gender inequality
    View
  • Carer health and wellbeing, Physical health

    28.11.2020

    Scoping review of family interventions that support the physical health of caregivers

    Abner Weng Cheong Poon , Julia Lappin , Alyssa Cassidy , Jan Breckenridge

    This article looks at the uses of family-based intervention in the context of the physical health of carers through the analysis of literature.

    Mental health Physical health Literature review Family interventions
    View
  • Service systems, Aged care services

    1.8.2015

    Dementia in retirement villages

    Kylie Miskovski , Lynn Chenoweth , Brendan Moore

    This report considers how well retirement villages facilitate ageing for residents living with dementia.

    Dementia Retirement Aged care
    View
  • Service systems, Disability services

    1.9.2021

    Carers missing out

    Timothy Broady

    This report examines claims that carers are missing out on essential services following the introduction of the National Disability Insurance Scheme (NDIS).

    NDIS Disability Disability services Carer support
    View

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The project is a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney. It is proudly funded by the NSW Government.