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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Carer burden
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Your search has returned 27 results

  • Carer health and wellbeing, Prevention and early intervention

    1.8.2021

    Caring for others and yourself

    Carers Australia, University of Canberra

    This executive summary reports on the findings of the 2021 Carer Wellbeing Survey.

    Carer recognition Carer wellbeing Carer support Mental health Social connectedness Financial wellbeing Employment Carer burden Survey
    View
  • Carer health and wellbeing, Prevention and early intervention

    15.1.2018

    Physical and psychological health of carers of young people with first episode psychosis

    Philip Ward, Celia Loneragan, Julia Lappin, Jackie Curtis, Abner Weng Cheong Poon

    This article investigates the physical and psychological impact on carers of caring for a young person with first episode psychosis.

    Carer burden Children and young people Lived experience Mental health Peer-reviewed journal article
    View
  • Service systems, Respite services

    10.11.2020

    Rethinking respite in Australia

    Lyn Phillipson, Keryn Johnson, Elaine Fielding, Elizabeth Cridland, Danika Hall, Christine Neville, Helen Hasan

    This article explores ways in which uptake of respite services can be improved among carers of people with dementia and reveals that more active support is needed to address carer decline, as opposed to passive respite information, which is often insufficient.

    Respite Dementia Carer burden Peer-reviewed journal article
    View
  • Specific groups of carers, Caring for someone with dementia

    10.4.2018

    A person-centred approach to family carer needs assessment and support in dementia community care in Western Australia

    Samar Aoun, Chris Toye, Susan Slatyer, Andrew Robinson, Elizabeth Beattie

    This study identifies the support needs of informal carers of people living with dementia through conducting qualitative research.

    Dementia Family caregivers Qualitative data Carer burden Carer support Peer-reviewed journal article
    View
  • Specific groups of carers, Young carers

    22.12.2016

    Change and adaptation in families with young carers

    Janet McDonald, Kevin Dew, Jacqueline Cumming

    This study used interviews to explore the experiences of families with young carers.

    Young carers Family caregivers Qualitative data Informal carers Carer burden Family Peer-reviewed journal article
    View
  • Specific groups of carers, Caring for someone with a serious illness

    22.1.2018

    Informal caregivers’ experiences of caring for people receiving dialysis

    Van Lan Hoang, Theresa Green, Ann Bonner

    This study focuses on the experiences of carers who care for someone with end stage kidney disease.

    Carer wellbeing Family caregivers End stage kidney disease Dialysis Carer burden Mental health Peer-reviewed journal article
    View
  • Specific groups of carers, Caring for someone living with a mental illness

    23.8.2020

    On loneliness

    Sharon Lawn

    This is a first person account from the perspective of a family carer for someone living with mental illness, writing about their own loneliness amidst their care and busy life.

    Carer burden Mental health carers Carer wellbeing Loneliness Open access Peer-reviewed journal article
    View
  • Carer health and wellbeing, Mental health

    26.10.2018

    Carers’ concerns about their older persons (Carees) at risk of falling

    Seng Giap Marcus Ang, Anthony Paul O’Brien, Amanda Wilson

    This study explored the experience of carers of people who are at risk of falling and how these carers can best be supported.

    Carer burden Older people Fall concern Open access Peer-reviewed journal article
    View
  • Recognition and inclusion, Carer recognition

    1.8.2017

    A just reward?

    Carers NSW

    This resource highlights the many disparities between paid and unpaid care.

    Carer burden Carer recognition Superannuation Respite Carer rights
    View
  • Caring and society, Economic value of caring

    1.3.2015

    Family caregiving

    Michelle DiGiacomo, Patricia M. Davidson

    This editorial explores multiple dimensions of the role of informal carers in health care and explores the physical, social, psychological, and financial implications of caregiving.

    Carer burden Family Open access
    View
  • Carer health and wellbeing, Mental health

    28.3.2022

    Caregiver burden and the associated factors in the family caregivers of patients with schizophrenia

    Leila Gholizadeh , Farnaz Rahmani, Fariborz Roshanghar, Elnaz Asghari

    This article analyses the experiences of families who care for a person with schizophrenia.

    Carer burden Carer wellbeing Family caregivers Peer-reviewed journal article
    View
  • Specific groups of carers, Young carers

    6.8.2012

    Bounded agency in young carers' lifecourse-stage domains and transitions

    Myra Hamilton,

    This study investigated young carers experiences and perspectives, outlined the service needs of these carers, and investigated the impacts of their caring role on their education, employment, health, and social life.

    Young carers Carer support Carer burden Peer-reviewed journal article
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.