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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Caregivers
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Your search has returned 49 results

  • Relationships and community, Social connection

    14.9.2024

    Sequential mediation model of social support, care burden, and internalized stigma among family function and depression in caregivers of patients with schizophrenia

    Teng Zhang, Ximei Wang, Bo Yang, Minsong Li, Liming Wang, Ce Yang, Chuanwen Fu, Zhengxu Li, Xuehui Zhang, Yangdong Guo, Nishang Zhang, Ensheng Pu, Jianzhong Yin , Social Psychiatry and Psychiatric Epidemiology

    This article explores how social support, care burden, and internalised stigma affect family carer of patients with schizophrenia in southwest China.

    Peer support Stigma Carer burden
    View
  • Relationships and community, Social connection

    1.9.2024

    Experiences of spouse caregivers of life partners suffering from dementia in the community

    Regina Ndunge Mukola

    The study explores the daily realities and challenges faced by spouses who care for partners with dementia.

    Dementia Social isolation Information Peer support
    View
  • Carer health and wellbeing, Prevention and early intervention

    11.6.2024

    How to support caregivers in general practice: development of the Caregiver Care Model

    Anna Mygind, Sara Marie Hebsgaard Offersen, Mai-Britt Guldin, Kaj S. Christensen, Mette Kjærgaard Nielsen

    The article discusses the development and pilot testing of the 'Caregiver Care Model', which aims to support caregivers in general practice by addressing emotional distress and grief.

    Mental health Palliative care Carer wellbeing
    View
  • Carer health and wellbeing, Mental health

    22.5.2024

    Can cessation of caregiving for parents relieve family caregivers’ psychological distress?

    Takashi Oshio, Ruru Ping

    This article examines the mental health effects of caregiving cessation among family caregivers in Japan, using data from a 17-wave national survey of 8,280 individuals aged 50–59.

    Carer support Carer needs Mental health Carer wellbeing Japan
    View
  • Carer health and wellbeing, Wellbeing programs

    28.8.2024

    A systematic review and meta-analysis of randomized controlled trials to reduce burden, stress, and strain in informal stroke caregivers

    Melissa Jammal , Gregory S Kolt, Karen P. Y. Liu, Justin M Guagliano, Nariman Dennaoui , Emma S. George

    This systematic review and meta-analysis examines the effectiveness of interventions aimed at reducing burden, stress, and strain among informal stroke caregivers.

    Carer wellbeing Mental health Literature review Meta analysis
    View
  • Carer health and wellbeing, Prevention and early intervention

    1.10.2024

    Examining mental and physical distress among male informal caregivers in the US

    Dexter L. Cooper, Andrew Simkus, Kristen D. Holtz, Nicole I. Wanty, Bashir Easter, Eric R. Wright

    The article examines the mental and physical distress experienced by male informal caregivers in the U.S. It finds that male caregivers are more likely to report disruptions in their daily lives due to health-related issues compared to female caregivers and non-caregiving males.

    Diversity Male caregivers Capacity building USA
    View
  • Recognition and inclusion, Inclusion in decision making

    9.10.2024

    Integrating community and family aged care

    Nancy A. Pachana, Sunil Bhar, Kumchong Lee, Mary Ann Geronimo, Shuang Liu

    This study highlights the importance of integrating community and family care for older Australians from diverse cultural backgrounds.

    Family caregivers Community Care Holistic Health Cultural Responsiveness
    View
  • Specific groups of carers, Culturally and linguistically diverse carers

    8.1.2025

    Experiences of Caregiving and Service use Among Ethnic Migrant Older Adults and Their Caregivers in Western Countries

    Anthony Obinna Iwuagwu, Abner Weng Cheong Poon, Elizabeth Fernandez

    This article looks at the experiences of older people from ethnic minority backgrounds (aged 60 and over) and their caregivers in Western countries.

    Older adults Diversity Cultural Responsiveness
    View
  • Service systems, Aged care services

    12.1.2025

    'I've heard of it but had nothing… not much to do with it'

    Anne-Marie Mahoney, Samantha Clune, Linda McAuliffe, Jo Rayner, Deirdre Fetherstonhaugh , Australasian Journal on Ageing

    This article explores the experiences of older people living in Australian residential aged care facilities (RACFs) and their families regarding the Resident of the Day (ROD) process.

    Aged care Support and Training Family caregivers
    View
  • Specific groups of carers, Caring for someone with dementia

    11.10.2023

    Early-onset familial Alzheimer’s disease: do socio-demographic variables differentiate family caregivers on social support, self-efficacy and coping strategies?

    Maritza García-Toro, María Cruz Sánchez-Gómez, Ariana Castillo-Alzuguren , International Journal of care and caring

    Alzheimer’s Social networks Support groups
    View
  • Carer health and wellbeing, Mental health

    25.6.2019

    Development of a Brief Caregiver-centric Screening Tool to Identify Risk of Depression among Caregivers of Hospitalized Older Adults

    Ee-Yuee Chan, Z-X Lim, Y Y Ding, Y H Chan, W S Lim

    This study focused on creating a tool to help identify caregivers of older adults in hospitals who might be at risk of depression.

    International publication Carer intervention Carer support Carer inclusion Sexuality
    View
  • Developing skills and knowledge, Caring skills

    24.12.2024

    Efficacy of Health Literacy Interventions for Caregivers of Individuals with Neurodevelopmental and Chronic Conditions

    Thom Nevill, Jessica Keeley, Susan Hunt, Rachel Skoss, Olivia Lindly, Jenny Downs, Amanda Marie Blackmore

    Carers of individuals with neurodevelopmental and chronic conditions play a vital role in managing health needs, but many struggle with limited health literacy.

    Carer burden Carer education Carer support Health care services Support and Training for carers
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.