Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 27 results
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15.2.2026
Coproducing an Evaluation of a Dementia Education Programme for Family Carers
Rhoda MacRae, Anna Jack-Waugh, Debbie Tolson, Eileen Harkess-Murphy, Jane Mimnaugh, Susan Holland
The Carers’ Academy is a skills‑based dementia education programme codesigned with family carers that was found to significantly improve carers’ wellbeing, dementia knowledge and practical care skills. The study also highlights the importance of involving family carers as coresearchers, showing that coproduction strengthens the relevance and impact of dementia education.
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4.9.2025
Insights on refugees with disability in Australia - Full Report
Wenqi Tan, Tadgh McMahon, Tri Nguyen, Gerard Goggin, Slamet Thohari , Settlement Services International (SSI) Australia, Western Sydney University
A report on a fifth phase of research carried out with newly arrived refugees in Australia explores the lived experiences of refugees with disability.
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30.5.2025
Type and efficacy of online training for informal carers:
This narrative literature review was conducted to explore recent evidence of informal carer eLearning education and training programs, and to guide the design of an online training program for Australian carers, including those living in rural and geographically remote settings.
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24.12.2024
Efficacy of Health Literacy Interventions for Caregivers of Individuals with Neurodevelopmental and Chronic Conditions
Thom Nevill, Jessica Keeley, Susan Hunt, Rachel Skoss, Olivia Lindly, Jenny Downs, Amanda Marie Blackmore
Carers of individuals with neurodevelopmental and chronic conditions play a vital role in managing health needs, but many struggle with limited health literacy.
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17.10.2024
Adapting a Preparatory Skills-Building Programme for Carers of People With Cancer Through Co-Design: The iCanSupport Project
Lukas Hofstätter ,
Existing programs often focus on mental health but overlook practical support for cancer carers. The iCanSupport project adapted existing programs using feedback from carers and healthcare professionals, making them more relevant to carers’ specific needs.
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1.10.2024
Explaining the Family-Centred Care of Young People With Depressive Disorders and Suicidal Ideations:
Fan-Ko Sun, Ann Long, Liang-Jen Wang, Ching-Shu Tsai, Chia-Jung Li, Chun-Ying Chiang
This study aimed to develop guidance for family members caring for young people with depressive disorders and suicidal ideations.
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12.9.2024
Development and Psychometric Evaluation of the Self-Care of Informal Caregivers Inventory
International Journal of Nursing Studies Advances
This study aimed to develop and validate a theory-based instrument, the Self-Care of Informal Caregivers Inventory, to measure self-care behaviors in three dimensions: maintenance, monitoring, and management.