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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 27 results

  • Developing skills and knowledge, Self-advocacy

    28.5.2024

    Strategies adopted by informal carers to enhance participation in daily activities for persons with dementia

    Gemma Burridge, Rosalind Bye, Carmen Amato, David Basic, Danielle Ni Chróinín, Susanna Hill, Kaitlin Howe, Karen P.Y.Liu

    This qualitative study aimed to explore the strategies carers use to assist individuals with dementia in completing daily activities.

    Mental health carers Carer stress Family caregivers Education Qualitative data
    View
  • Developing skills and knowledge, Online learning

    1.5.2024

    Behaviours of children with disability

    Cat Strawa, Cat Lancaster, Anagha Joshi, Mandy Truong, Jasmine MacDonald, Kylie Butler

    This online evidence package about behaviours of children with disability provides resources to parents, carers, policymakers, service providers and educators.

    Parents Children with disabilities Carer support Information
    View
  • Developing skills and knowledge, Self-advocacy

    2.9.2023

    Equal right to decide

    Justine O’Neill, Anthony Mulholland, Len Robinson, Kerry Watson, Basak Batmaz, Nicole Meikle

    This paper focuses on the inclusion of people with intellectual disabilities in research and their perspectives on human rights and decision-making in the Australian context.

    Intellectual disability Carer education Decision-making Qualitative study
    View
  • Developing skills and knowledge, Caring skills

    2.6.2023

    How well prepared are we for disaster?

    Tonia Crawford, Ivy Yen, Kuo-yi Jade Chang, Gwynnyth Llewellyn, Dale Dominey-Howes, Michelle Villeneuve

    During disasters, carers often have the responsibility of assisting the person they care for, as well as ensuring their own safety. This article explores the impact of disasters on carers of people with disability.

    Natural disasters Disability Peer-reviewed journal article Carer inclusion Qualitative study
    View
  • Developing skills and knowledge, Communication skills

    15.12.2022

    Half the story

    Dementia Australia

    This resource provides useful information, tips, and strategies for those that want to consult in a meaningful way with people living with dementia.

    Dementia Participatory research Lived experience Report
    View
  • Developing skills and knowledge, Caring skills

    19.7.2022

    Applying the RE-AIM framework to evaluate a holistic caregiver-centric hospital-to-home programme

    Ee-Yuee Chan, Ling Ting Wu, Emmalene Joo Yong Ng, George Frederick Glass Jr, Robyn Hwee Teng Tan

    The Carer Matters program was created to support family caregivers as they help their loved ones transition from hospital to home.

    International publication Carer support Support and Training Quantitative data Qualitative data
    View
  • Developing skills and knowledge, Self-advocacy

    18.3.2021

    Practices of inclusion for carers who are higher education students

    Jordan Taylor, Paula Gleeson, Tania Teague, Michelle DiGiacomo

    This article explores how carers are included and assisted by education institutions.

    Education Higher education Carer support Peer-reviewed journal article Qualitative study
    View
  • Developing skills and knowledge, Mentoring and coaching

    9.10.2019

    Carer-in-residence toolbox

    Leila Frijat, Paula Gleeson, Tania Teague

    The Carer-in-Residence toolbox is for employers interested in establishing a Carer-in-Residence role within their workplace.

    Employment Flexible work Participatory research Carer recognition 5 minute read Video
    View
  • Developing skills and knowledge, Caring skills

    18.7.2016

    Health literacy of caregivers of adult care recipients

    Eva Y. N. Yuen, Tess Knight, Lina A. Ricciardelli, Susan Burney

    This article analyses the health literacy of informal carers and how this correlates with health outcomes for care recipients.

    Health literacy Caregivers Peer-reviewed journal article Open access Scoping review Systematic review
    View
  • Developing skills and knowledge, Caring skills

    16.5.2014

    Coping Strategies in Mothers of Children with Heart Defects

    Natalia Sira, Priti P. Desai, Kathryn J. Sullivan , David W. Hannon , Taylor & Francis online

    This study explore how mothers of children with congenital heart defects (CHD) face unique stressors and use different coping strategies to manage their child’s condition.

    Carer needs Support and Training Information Peer support service design Cross-sectional study Survey
    View
  • Developing skills and knowledge, Group learning

    12.3.2014

    Family perceptions of benefits and barriers to first episode psychosis carer group participation

    Julia Oxley, Hannah Bloom

    This study evaluated an open-ended family group intervention within a public adult mental health service.

    First-episode psychosis Carer education Social isolation Survey
    View
  • Developing skills and knowledge, Group learning

    19.3.2012

    Carer psychoeducation in first-episode psychosis

    Hannah Bloom, Julia Oxley,

    This study aimed to evaluate a psychoeducation programme provided within a public adult mental health service, designed for the families of clients experiencing first-episode psychosis.

    Carer education First-episode psychosis Carer support Qualitative study
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.