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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

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Your search has returned 76 results

  • Carer health and wellbeing, Physical health

    8.3.2019

    Health of carers of young people with early psychosis

    Abner Weng Cheong Poon, Jackie Curtis, Ann Howard, Philip Ward, Julia Lappin

    This research demonstrates the importance of a biopsychosocial approach to supporting the carers of mental health service users, to improve health and wellbeing outcomes for both client and carer.

    Health Mental health carers Mental health services Children and young people Peer-reviewed journal article Survey Quantitative data
    View
  • Carer health and wellbeing, Prevention and early intervention

    15.1.2018

    Physical and psychological health of carers of young people with first episode psychosis

    Philip Ward, Celia Loneragan, Julia Lappin, Jackie Curtis, Abner Weng Cheong Poon

    This article investigates the physical and psychological impact on carers of caring for a young person with first episode psychosis.

    Carer burden Children and young people Lived experience Mental health Peer-reviewed journal article Quantitative data
    View
  • Caring and society, Economic value of caring

    1.8.2020

    The value of informal care in 2020

    Deloitte Access Economics

    This report estimates the total value of informal care provided in Australia today and examines the implications of demographic trends and projections for informal care in the future.

    Informal carers Economic modelling Social policy Quantitative data 2 minute read Finances
    View
  • Service systems, Service changes

    22.12.2016

    The impact of caring on informal carers' employment, income and earnings

    Michael Bittman, Trish Hill, Cathy Thomson

    Noting the gradual shift from institutionalised forms of health and aged care into the home and community, this paper examines the effect on family and friend carers who are required to balance employment with emerging care responsibilities.

    Financial hardship Employment Financial wellbeing Peer-reviewed journal article Longitudinal Quantitative data
    View
  • Service systems, Disability services

    22.12.2016

    What is a person-centred approach?

    Timothy Broady

    This article reviews the person-centred approach to care within the disability sector in NSW.

    Disability services Carer recognition Carer education Person-centred Peer-reviewed journal article Quantitative data Survey
    View
  • Specific groups of carers, Caring for someone living with a mental illness

    15.12.2017

    Perceived needs of carers of people with psychosis

    Abner Weng Cheong Poon, Lynette Joubert, Carol Harvey

    This article takes a deeper look at the needs of carers for people with psychosis based on a series of semi-structured interviews with 98 carers recruited in the Australian prevalence study of psychosis.

    Psychosis Carer recognition Policy Carer needs Peer-reviewed journal article Quantitative data Qualitative data Longitudinal
    View
  • Specific groups of carers, Rural and regional carers

    3.8.2020

    The impact of caregiving on the health status of regional carers in Australia

    Marie Hutchinson, John Hurley

    This article analyses the health and wellbeing of carers, specifically looking at the associated challenges of carers in regional Australia.

    Rural and regional Health Carer wellbeing NDIS Aboriginal and Torres Strait Islander Peer-reviewed journal article Quantitative data Qualitative data
    View
  • Specific groups of carers, Rural and regional carers

    24.1.2018

    Carers' preferences for the delivery of therapy services for people with disability in rural Australia

    Gisselle Gallego, Angela Dew, Anita Bundy, Kim Bulkeley, Jennie Brentnall, Craig Veitch

    This study used a survey to better understand the needs and preferences of carers and care recipients regarding the delivery of therapy services.

    Rural and regional NDIS Quantitative data Support services Mental health services Peer-reviewed journal article Survey
    View
  • Carer health and wellbeing, Prevention and early intervention

    10.12.2010

    Falls in older people receiving in-home informal care across Victoria

    Claudia Meyer, Briony Dow, Belinda E Bilney, Kirsten J Moore, Amanda L Bingham, Keith D. Hill

    This article explores fall risks among older people and the subsequent impacts this has on care recipients and their carers.

    Older people Informal carers Mental health Older adults Peer-reviewed journal article Quantitative data
    View
  • Carer health and wellbeing, Mental health

    2.1.2013

    I feel your pain

    Carol T. Kulik, Christina Cregan, Hugh Bainbridge

    This article explores the experiences of people with disabilities in the workplace, and the subsequent impact on both the care recipient’s and carer’s psychological wellbeing

    Mental health carers Work and care Peer-reviewed journal article Quantitative data Survey
    View
  • Service systems, Respite services

    1.2.2018

    Improving access to aged residential respite care

    Carers Australia

    Residential respite is an essential element of aged care, however, many are struggling to access this service and this report investigates why.

    Aged care Respite Access to care Survey Quantitative data
    View
  • Specific groups of carers, Young carers

    1.1.2016

    The Longitudinal Study of Australian Children (LSAC) annual statistical report 2016

    Diana Warren, Ben Edwards

    This chapter aims to shed light on how many children provide care, how much time they spend caring, the type of care they provide, the impact of a household’s socio-economic circumstances on caring, and the impact of caring on a young person’s academic achievement.

    Young carers Children and young people Quantitative data Report Longitudinal
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.