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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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  • How to use the Research Library

    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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  • Add your research

    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

    My Research

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

young carers
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Your search has returned 42 results

  • Specific groups of carers, Young carers

    2.6.2010

    Children and young people as active agents in care-giving

    Ciara Smyth, Bettina Cass, Trish Hill

    This article provides an analysis of literature and primary research regarding young people who are informal carers.

    Young carers Education Flexible work Hidden carers Peer-reviewed journal article
    View
  • Specific groups of carers, Young carers

    1.8.2011

    Young carers

    Trish Hill, Cathy Thomson, Bettina Cass

    This article investigates the influence of location on young carers maintaining their education and employment.

    Young carers Education Employment Peer-reviewed journal article
    View
  • Specific groups of carers, Young carers

    29.4.2019

    The emotional well-being of young people having a parent with younger onset dementia

    Karen Hutchinson, Chris Roberts, Susan Kurrle, Michele Daly

    This article focuses on the lived experiences of young people caring for a parent with younger onset dementia.

    Children and young people Young carers Lived experience Younger onset dementia Support services Carer wellbeing Peer-reviewed journal article
    View
  • Specific groups of carers, Young carers

    13.11.2015

    Empowerment of young people who have a parent living with dementia

    Karen Hutchinson, Chris Roberts, Michele Daly, Caroline Bulsara, Susan Kurrle

    This article looks at the complexities of the societal support young people who care for a parent with younger onset dementia may need.

    Young carers Children and young people Dementia Discrimination Qualitative data Peer-reviewed journal article
    View
  • Specific groups of carers, Young carers

    1.2.2014

    Invisible carers

    Karen Hutchinson, Chris Roberts, Susan Kurrle

    This article looks at the experiences of young people who are involved in the care of family members with younger onset dementia.

    Young carers Younger onset dementia Discrimination Qualitative data Open access 10 minute read
    View
  • Specific groups of carers, Caring for someone with dementia

    1.10.2018

    Feeling invisible and ignored

    Karen Hutchinson, Chris Roberts, Pamela Roach

    This article analyses the effects that younger onset dementia has on the whole family through interviews with impacted individuals.

    Young carers Younger onset dementia Qualitative data Lived experience Open access
    View
  • Specific groups of carers, Young carers

    1.1.2021

    Young carer advocacy project

    Little Dreamers

    This advocacy report by Little Dreamers Australia, comprehensively explores the experiences of young carers around Australia and provides four key recommendations to improve the quality of life of young carers.

    Young carers Advocacy Lived experience Quantitative data Report
    View
  • Specific groups of carers, Young carers

    28.4.2022

    Caregiver or care receiver

    Leila Gholizadeh , Farnaz Rahmani, Fariborz Roshanghar, Geoffrey L. Dickens

    Using qualitative research methods, this article explores the experience of adolescent carers who care for a parent with severe mental illness.

    Young carers Qualitative data Mental illness Carer wellbeing Lived experience Peer-reviewed journal article
    View
  • Specific groups of carers, Young carers

    20.8.2021

    Associations between young informal caring and mental health

    Tania King, Ankur Singh, George Disney

    This article investigates the impact of caring in adolescence on the mental health young carers in proceeding years.

    Young carers Mental health Children and young people Peer-reviewed journal article Open access
    View
  • Specific groups of carers, Young carers

    1.8.2017

    Young carers

    Diana Warren, Ben Edwards

    This report provides valuable details about the lived experiences of young carers in Australia.

    Young carers Children and young people Carer recognition Open access Report
    View
  • Specific groups of carers, Young carers

    2.9.2006

    Young carers in refugee and asylum‐seeking families

    Helen Leadbitter

    This article explores the valuable insights gained from an international symposium for practitioners and policy specialists on addressing the
    needs of young carers in refugee and asylum-seeking families.

    Young carers Carer wellbeing Refugees CALD
    View
  • Specific groups of carers, Young carers

    6.8.2012

    Bounded agency in young carers' lifecourse-stage domains and transitions

    Myra Hamilton,

    This study investigated young carers experiences and perspectives, outlined the service needs of these carers, and investigated the impacts of their caring role on their education, employment, health, and social life.

    Young carers Carer support Carer burden Peer-reviewed journal article
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.