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Research Library

The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.

There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.

For help using the Research Library, click here.

Please also see our Frequently asked questions page.

The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.

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    Find out more about how to find a resource on the Carer Knowledge Exchange Research Library here.

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    Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.

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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above

Children and young people
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Your search has returned 28 results

  • Carer health and wellbeing, Physical health

    8.3.2019

    Health of carers of young people with early psychosis

    Abner Weng Cheong Poon, Jackie Curtis, Ann Howard, Philip Ward, Julia Lappin

    This research demonstrates the importance of a biopsychosocial approach to supporting the carers of mental health service users, to improve health and wellbeing outcomes for both client and carer.

    Health Mental health carers Mental health services Children and young people Peer-reviewed journal article
    View
  • Specific groups of carers, Aboriginal and Torres Strait Islander carers

    12.8.2018

    Interacting with providers

    Anna Green, Penelope Abbott, Patricia M. Davidson, Patricia Delaney, John Delaney, Patrick Patradoon-Ho, Michelle DiGiacomo

    New research into Aboriginal carers’ experiences of accessing services and support for their child with a disability indicates a lack of cultural awareness and the presence of racism, with the authors arguing that a community-led approach can help counter intersectional oppression.

    Aboriginal and Torres Strait Islander Children and young people Disability Health care services Qualitative data Lived experience Open access Peer-reviewed journal article
    View
  • Carer health and wellbeing, Prevention and early intervention

    15.1.2018

    Physical and psychological health of carers of young people with first episode psychosis

    Philip Ward, Celia Loneragan, Julia Lappin, Jackie Curtis, Abner Weng Cheong Poon

    This article investigates the physical and psychological impact on carers of caring for a young person with first episode psychosis.

    Carer burden Children and young people Lived experience Mental health Peer-reviewed journal article
    View
  • Specific groups of carers, Young carers

    13.10.2021

    Young carers in Australia

    Lukas Hofstaetter, Isaac Yeboah Addo, Sienna Aguilar, Abner Weng Cheong Poon

    This qualitative study presents insights into the effects of providing informal care on the lives of young carers and their support-seeking behaviour.

    Young carers Carer support Children and young people Peer-reviewed journal article
    View
  • Specific groups of carers, Caring for someone with dementia

    11.1.2018

    I just can't please them all and stay sane

    Gemma Tatangelo, Marita McCabe, Ashley Macleod, Anastasia Konis

    Examining the relationship between family dynamics and adult child caregiver distress, this study seeks to better understand the experience of caring for an older relative with dementia and address problematic family dynamics in the caring context.

    Dementia Family Qualitative data Children and young people Family caregivers Peer-reviewed journal article
    View
  • Specific groups of carers, Caring for someone living with a mental illness

    3.9.2011

    Primary caregivers’ satisfaction with clinicians’ response to them as informal carers of young people with first-episode psychosis

    Terence V McCann, Dan I Lubman, Eileen Clark

    This article aims to explore carers’ experiences of mental health nurses and other mental health clinicians in regard to how they respond to them as carers of young people with first-episode psychosis.

    Qualitative data Mental health carers First-episode psychosis Children and young people Peer-reviewed journal article
    View
  • Specific groups of carers, Young carers

    1.1.2016

    The Longitudinal Study of Australian Children (LSAC) annual statistical report 2016

    Diana Warren, Ben Edwards

    This chapter aims to shed light on how many children provide care, how much time they spend caring, the type of care they provide, the impact of a household’s socio-economic circumstances on caring, and the impact of caring on a young person’s academic achievement.

    Young carers Children and young people Quantitative data Report
    View
  • Specific groups of carers, Young carers

    2.6.2010

    Children and young people as active agents in care-giving

    Ciara Smyth, Bettina Cass, Trish Hill

    This article provides an analysis of literature and primary research regarding young people who are informal carers.

    Young carers Education Flexible work Hidden carers Peer-reviewed journal article
    View
  • Carer health and wellbeing, Mental health

    12.3.2014

    An exploratory study of the profile and perceived needs of people with mental Illness who are caring for young children in Singapore

    Abner Weng Cheong Poon, Cheng Lee, Lilian Mark

    This article examines the needs of individuals living with a mental illness who are caring for a young child.

    Children and young people Mental illness Carer support sector Parents Peer-reviewed journal article
    View
  • Specific groups of carers, Young carers

    29.4.2019

    The emotional well-being of young people having a parent with younger onset dementia

    Karen Hutchinson, Chris Roberts, Susan Kurrle, Michele Daly

    This article focuses on the lived experiences of young people caring for a parent with younger onset dementia.

    Children and young people Young carers Lived experience Younger onset dementia Support services Carer wellbeing Peer-reviewed journal article
    View
  • Specific groups of carers, Young carers

    13.11.2015

    Empowerment of young people who have a parent living with dementia

    Karen Hutchinson, Chris Roberts, Michele Daly, Caroline Bulsara, Susan Kurrle

    This article looks at the complexities of the societal support young people who care for a parent with younger onset dementia may need.

    Young carers Children and young people Dementia Discrimination Qualitative data Peer-reviewed journal article
    View
  • Specific groups of carers, Caring for a child who is sick or has a disability

    12.5.2018

    Mindfulness-integrated CBT (MiCBT) for reducing distress in parents of children with intellectual disability (ID)

    Alice Shires, Raphaella Osborn, Mary Girgis, Stephanie Morse, Jovana Sladakovic, Ian Kneebone, Seeta Durvasula, Lynette Roberts

    This examines ways in which Mindfulness-Integrated Cognitive Behavioural Therapy (MiCBT) can improve levels of distress in parents who care for a child with an intellectual disability.

    Children and young people Carer wellbeing Intellectual disability Mental health Open access Peer-reviewed journal article
    View
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The Carer Knowledge Exchange is led by Carers NSW and proudly funded by the NSW Government. It was established as a partnership between Carers NSW and the Institute for Public Policy and Governance (IPPG) at the University of Technology Sydney from 2021-2024. We acknowledge Aboriginal and Torres Strait Islander peoples as the First Australians and Traditional Custodians of the lands where we live, learn and work.